Pain, Quality of Life, and Coping in Pediatric Sickle Cell Disease
Sickle cell disease (SCD) affects predominately African Americans and is one of the most prevalent diseases in the United States (Schecter, 1999). Research has not sufficiently examined whether pain associated with SCD impacts quality of life or whether coping impacts this relation. The purpose of this study was to examine the relation between pain and quality of life in children with SCD and to determine whether coping moderates the relation. A secondary aim was to examine associations between age and pain, quality of life, and coping. A final exploratory aim was to examine the relation between racial identity and study variables. Method: 104 children (M = 12.93 years, SD = 3.17 years) with SCD and their parents participated during a regularly scheduled SCD-related medical visit. Parents completed a demographic form. Children completed the Pediatric Pain Questionnaire (PPQ), the Pain Coping Questionnaire (PCQ), the Pediatric Quality of Life Inventory (PedsQL), Sickle Cell Disease Quality of Life (SCD-QoL), and the Multidimensional Inventory of Black Identity (MIBI). Results: After controlling for site and gender, regression analyses revealed that pain ([beta] = -0.37) and emotion-focused avoidance coping ([beta] = -0.39) were significant predictors of overall generic quality of life (PedsQL Total Score), total R2 = 0.44, F (5, 93) = 13.88, p