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Protecting Participants and Facilitating Social and Behavioral Sciences Research
Protecting Participants and Facilitating Social and Behavioral Sciences Research
Institutional review boards (IRBs) are the linchpins of the protection systems that govern human participation in research. In recent years, high-profile cases have focused attention on the weaknesses of the procedures for protecting participants in medical research. The issues surrounding participants protection in the social, behavioral, and economic sciences may be less visible to the public eye, but they are no less important in ensuring ethical and responsible research. This report examines three key issues related to human participation in social, behavioral, and economic sciences research: (1) obtaining informed, voluntary consent from prospective participants: (2) guaranteeing the confidentiality of information collected from participants, which is a particularly challenging problem in social sciences research; and (3) using appropriate review procedures for "minimal-risk" research. Protecting Participants and Facilitating Social and Behavioral Sciences Research will be important to policy makers, research administrators, research sponsors, IRB members, and investigators. More generally, it contains important information for all who want to ensure the best protectionâ€"for participants and researchers alikeâ€"in the social, behavioral, and economic sciences.
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Change and the 2020 Census
Change and the 2020 Census
Sponsored by the Census Bureau and charged to evaluate the 2010 U.S. census with an eye toward suggesting research and development for the 2020 census, the Panel to Review the 2010 Census uses this first interim report to suggest general priorities for 2020 research. Although the Census Bureau has taken some useful organizational and administrative steps to prepare for 2020, the panel offers three core recommendations, and suggests the Census Bureau take and assertive, aggressive approach to 2020 planning rather than casting possibilities purely as hypothetical. The first recommendation on research and development suggests four broad topic areas for research early in the decade. Second, the report suggest that the Bureau take an aggressive, assertive posture toward research in these priority areas. Third, it identifies the setting of bold goals as essential to underscoring the need for serious reengineering and building commitment to change.
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Allocating Federal Funds for State Programs for English Language Learners
Allocating Federal Funds for State Programs for English Language Learners
As the United States continues to be a nation of immigrants and their children, the nation's school systems face increased enrollments of students whose primary language is not English. With the 2001 reauthorization of the Elementary and Secondary Education Act (ESEA) in the No Child Left Behind Act (NCLB), the allocation of federal funds for programs to assist these students to be proficient in English became formula-based: 80 percent on the basis of the population of children with limited English proficiency1 and 20 percent on the basis of the population of recently immigrated children and youth. Title III of NCLB directs the U.S. Department of Education to allocate funds on the basis of the more accurate of two allowable data sources: the number of students reported to the federal government by each state education agency or data from the American Community Survey (ACS). The department determined that the ACS estimates are more accurate, and since 2005, those data have been basis for the federal distribution of Title III funds. Subsequently, analyses of the two data sources have raised concerns about that decision, especially because the two allowable data sources would allocate quite different amounts to the states. In addition, while shortcomings were noted in the data provided by the states, the ACS estimates were shown to fluctuate between years, causing concern among the states about the unpredictability and unevenness of program funding. In this context, the U.S. Department of Education commissioned the National Research Council to address the accuracy of the estimates from the two data sources and the factors that influence the estimates. The resulting book also considers means of increasing the accuracy of the data sources or alternative data sources that could be used for allocation purposes.
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Reengineering the 2010 Census
Reengineering the 2010 Census
At the request of the U.S. Census Bureau, the National Research Council's Committee on National Statistics established the Panel on Research on Future Census Methods to review the early planning process for the 2010 census. This new report documents the panel's strong support for the major aims of the Census Bureau's emerging plan for 2010. At the same time, it notes the considerable challenges that must be overcome if the bureau's innovations are to be successful. The panel agrees with the Census Bureau that implementation of the American Community Survey and, with it, the separation of the long form from the census process are excellent concepts. Moreover, it concurs that the critically important Master Address File and TIGER geographic systems are in dire need of comprehensive updating and that new technologies have the potential to improve the accuracy of the count. The report identifies the risks and rewards of these and other components of the Census Bureau's plan. The report emphasizes the need for the bureau to link its research and evaluation efforts much more closely to operational planning and the importance of funding for a comprehensive and rigorous testing program before 2010.
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Once, Only Once, and in the Right Place
Once, Only Once, and in the Right Place
The usefulness of the U.S. decennial census depends critically on the accuracy with which individual people are counted in specific housing units, at precise geographic locations. The 2000 and other recent censuses have relied on a set of residence rules to craft instructions on the census questionnaire in order to guide respondents to identify their correct "usual residence." Determining the proper place to count such groups as college students, prisoners, and military personnel has always been complicated and controversial; major societal trends such as placement of children in shared custody arrangements and the prevalence of "snowbird" and "sunbird" populations who regularly move to favorable climates further make it difficult to specify ties to one household and one place. Once, Only Once, and in the Right Place reviews the evolution of current residence rules and the way residence concepts are presented to respondents. It proposes major changes to the basic approach of collecting residence information and suggests a program of research to improve the 2010 and future censuses.
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Measuring Racial Discrimination
Measuring Racial Discrimination
Many racial and ethnic groups in the United States, including blacks, Hispanics, Asians, American Indians, and others, have historically faced severe discriminationâ€"pervasive and open denial of civil, social, political, educational, and economic opportunities. Today, large differences among racial and ethnic groups continue to exist in employment, income and wealth, housing, education, criminal justice, health, and other areas. While many factors may contribute to such differences, their size and extent suggest that various forms of discriminatory treatment persist in U.S. society and serve to undercut the achievement of equal opportunity. Measuring Racial Discrimination considers the definition of race and racial discrimination, reviews the existing techniques used to measure racial discrimination, and identifies new tools and areas for future research. The book conducts a thorough evaluation of current methodologies for a wide range of circumstances in which racial discrimination may occur, and makes recommendations on how to better assess the presence and effects of discrimination.
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Ensuring the Quality, Credibility, and Relevance of U.S. Justice Statistics
Ensuring the Quality, Credibility, and Relevance of U.S. Justice Statistics
The Bureau of Justice Statistics (BJS) of the U.S. Department of Justice is one of the smallest of the U.S. principal statistical agencies but shoulders one of the most expansive and detailed legal mandates among those agencies. Ensuring the Quality, Credibility, and Relevance of U.S. Justice Statistics examines the full range of BJS programs and suggests priorities for data collection. BJS's data collection portfolio is a solid body of work, well justified by public information needs or legal requirements and a commendable effort to meet its broad mandate given less-than-commensurate fiscal resources. The book identifies some major gaps in the substantive coverage of BJS data, but notes that filling those gaps would require increased and sustained support in terms of staff and fiscal resources. In suggesting strategic goals for BJS, the book argues that the bureau's foremost goal should be to establish and maintain a strong position of independence. To avoid structural or political interference in BJS work, the report suggests changing the administrative placement of BJS within the Justice Department and making the BJS directorship a fixed-term appointment. In its thirtieth year, BJS can look back on a solid body of accomplishment; this book suggests further directions for improvement to give the nation the justice statistics-and the BJS-that it deserves.
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Understanding American Agriculture
Understanding American Agriculture
The Agricultural Resource Management Survey (ARMS) is the federal government's primary source of information on the financial condition, production practices, and resource use on farms, as well as the economic well-being of America's farm households. ARMS data are important to the U.S. Department of Agriculture (USDA) and to congressional, administration, and industry decision makers when they must weigh alternative policies and programs that touch the farm sector or affect farm families. ARMS is unique in several respects. As a multiple-purpose survey with an agricultural focus, ARMS is the only representative national source of observations of farm-level production practices, the economics of the farm businesses operating the field (or dairy herd, greenhouse, nursery, poultry house, etc.), and the characteristics of the American farm household (age, education, occupation, farm and off-farm work, types of employment, family living expenses, etc.). No other data source is able to match the range and depth of ARMS in these areas. American agriculture is changing, and the science of statistical measurement is changing as well. As with every major governmental data collection with such far-reaching and important uses, it is critical to periodically ensure that the survey is grounded in relevant concepts, applying the most up-to-date statistical methodology, and invested with the necessary design, estimation, and analytical techniques to ensure a quality product. ARMS is a complex undertaking. From its start as a melding of data collected from the field, the farm, and the household in a multiphase, multiframe, and multiple mode survey design, it has increased in complexity over the decade of its existence as more sophisticated demands for its outputs have been made. Today, the survey faces difficult choices and challenges, including a need for a thorough review of its methods, practices, and procedures. Understanding American Agriculture : Challenges for the Agricultural Resource Management Survey summarizes the recommendations of the committee who wrote the survey.
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The National Children's Study Research Plan
The National Children's Study Research Plan
The National Children's Study (NCS) is planned to be the largest long-term study of environmental and genetic effects on children's health ever conducted in the United States. It proposes to examine the effects of environmental influences on the health and development of approximately 100,000 children across the United States, following them from before birth until age 21. By archiving all of the data collected, the NCS is intended to provide a valuable resource for analyses conducted many years into the future. This book evaluates the research plan for the NCS, by assessing the scientific rigor of the study and the extent to which it is being carried out with methods, measures, and collection of data and specimens to maximize the scientific yield of the study. The book concludes that if the NCS is conducted as proposed, the database derived from the study should be valuable for investigating hypotheses described in the research plan as well as additional hypotheses that will evolve. Nevertheless, there are important weaknesses and shortcomings in the research plan that diminish the study's expected value below what it might be.
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Measuring a Changing Nation
Measuring a Changing Nation
This final report of the Panel on Alternative Census Methodologies provides an assessment of the Census Bureau's plans for the 2000 census as of the time of the 1998 census dress rehearsal. It examines changes in census plans following, and to a modest extent in reaction to, the panel's second interim report, regarding the use of sampling for nonresponse follow-up, construction of the master address file, use of multiple response modes and respondent-friendly questionnaires, and the use of administrative records. It also describes evaluation plans for the census dress rehearsal and plans for data collection and experimentation during the 2000 census. Most of the results from the dress rehearsal were not yet available to the panel, so this report does not offer any suggested changes to 2000 census plans in response to the dress rehearsal.
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